After the Diagnosis: Supporting YOU With Making Sense of Labels, Dining Out With Confidence and Transitioning Smoothly to a Gluten-Free Diet

Cynthia Kupper, RD

  • How to support celiac adults and children
  • Understanding labeling regulations and standards
  • Dining out gluten-free
  • Identifying hidden sources of gluten

You spoke and we listened. We've added a spot for comments for those of you that aren't on Facebook.

Comments

comments

57 Comments

    Janice Heno

    Great information for those of us who are new to this phenomena of gluten sensitivities. It seems like we need to be much more diligent in identifying gluten terms on labels or just eat real food!

      Julia

      I actually have a dedicated toaster. I also never use wooden spoons that have been use in preparing gluten containing foods as they absorb the gluten. I have dedicated cook ware and measuring devices as well. I simply don’t want any chance of contamination.

    Leslie

    Do I need to worry about using the toaster with other breads if I am gluten intolerant?

    Nettie Reid

    Excellent interview.

    Denise Figiel

    would be nice to be able to stop and start the talks when needed instead of starting at the beginning every time one is called away from the compter

    Suzy

    Cynthia mentioned that brewer’s yeast contains gluten. What about nutritional yeast? I believe that is not a product of beer-making and would therefore not contain gluten. Is that correct? Very informative presentation, thank you!

    Sybil Nassau, Branch Manager,

    Thanks Cynthia, great presentation! Can you straighten out this problem with beer? Is English beer different from that produced in the US? And autistic children also seem to do better on a casein free diet as well as gluten free.

      Dr. Tom O'Bryan

      IMPORTANT!!! All Right Folks, I have to intervene now. Dr. Marsh is truly the ‘Godfather of Celiac Diagnosis’ but he would be the first to tell you he is not an expert in WHICH foods work and do not work for each individual on a GFD. I have to urge caution before even thinking about breaking a GFD with gluten-containing beer. I’ll talk about this in more detail at the end of The Summit, but PLEASE do NOT think I am endorsing gluten-containing beer for someone with a gluten related disorder. If you want to try beer, please first read the article about re-introducing gluten:http://www.thedr.com/images/reintroducegluten.pdf And please pay close attention to the words in red: THIS IS STRONGLY NOT RECOMMENDED. Once again, this is NOT recommended, but if you are going to, this is the safest protocol. Take care of yourselves! Tom O’Bryan, DC, CCN, DACBN

    Michelle Church

    Brewer’s yeast? I use yeast in making my gluten free bread. Dr. Marsh stated beer was okay. Why would brewer’s yeast be problematic? What alternatives are there?

    Paul

    Nice job Cynthia hopefully, we can chat soon.

    Linda

    I am very excited about this Gluten Summit and look forward to hearing all the doctors in their specialties help spread the word about eating GF and also what I call “Clean Foods”. As an Allergen-Toxin Health Coach and Clean Foods Gourmet Cook I work each day with my clients to free themselves of symptoms so they can live extraordinary lives they deserve. Educating and inspiring to eat gluten-allergen free and GMO free delicious meals is my true purpose in life after living with my allergies/intolerances after 9 years. Blessings, Linda http://www.lifestyleChanges2Health.com / PleasinThePalate.com

    carolyn

    Can any of the various enzyme preparations with DPP-IV (Dipeptidyl peptidase) activity be reccomended as useful when eating out?

    Sophia jones

    Thank you so much for these interviews

    michelle crone naturopath

    Thanks Cynthia, for a fab presentation…you mentioned diabetics have a higher incidence of gluten intolerance… how about gestational diabetics? is this the same type of risk and what of the baby?

    Mel

    There is no branch in my entire state (LA). Restaurants in my area are clueless. Some of the doctors here are, as well. We could really use the support here!

    Susan

    Great and very useful information!! Thank you again!

    Ginny

    Helpful information so far. However, the comment “if it doesn’t contain these five things, then it”s gluten free” seems misleading, especially to the newly diagnosed Celiac who might hear this and feel this diet is easy to maintain just by simply reading and trusting a label. I understand that FALCPA is helpful, but I don’t believe it addresses cross contamination. If labeling was that reliable, then there would not be a need for testing or gluten free certification. This is so important for the Celiac. As Dr. Marsh stated, cross contamination and a strict gluten free diet is important for the Celiac to maintain good health. You addressed this with the beer and with dining out, why not with the food products?

      Dr. Tom O'Bryan

      IMPORTANT!!! All Right Folks, I have to intervene now. Dr. Marsh is truly the ‘Godfather of Celiac Diagnosis’ but he would be the first to tell you he is not an expert in WHICH foods work and do not work for each individual on a GFD. I have to urge caution before even thinking about breaking a GFD with gluten-containing beer. I’ll talk about this in more detail at the end of The Summit, but PLEASE do NOT think I am endorsing gluten-containing beer for someone with a gluten related disorder. If you want to try beer, please first read the article about re-introducing gluten:http://www.thedr.com/images/reintroducegluten.pdf And please pay close attention to the words in red: THIS IS STRONGLY NOT RECOMMENDED. Once again, this is NOT recommended, but if you are going to, this is the safest protocol. Take care of yourselves! Tom O’Bryan, DC, CCN, DACBN

    Helen

    Very informative, thank you.

    Joan Hartwick

    Hi, your presentation was very informative, very interesting insights! Thank you so very much.

    Mira

    Thank you all these wonderful information!!! I am so worried at the moment. Living in Beijing, China, not easy to find out about the gluten. They just don’t get it. Thought at least Sushi is safe but I was wrong. Feels my tummy does not like anything wright now:-(

    miriam

    I am surprised at your definition of a gluten free product regarding products that do not have a GF label or an allergy warning. You say that any food that does not list any of the mentioned grains in its ingrediants is gluten free! But in the support group where I come from, they go on and on about cross cantamination not only in the home or in restaurants, but in production/packaging lines, as well. Many will call the manufacturer of such supposedly gluten free products and if they do not get assurances (which is usaully the case) that the product definitly did not come in to contact with any kind of gluten , they will not consider using that product. It usually boils down to how much of a ‘risk’ one is willing to take.

    james

    Dr. your link to the first days seminars is not working could you please fix it so that we can listen to the sessions tight away. Thanks

    Pushpa

    Enjoyed it very much, extremely helpful. Now I will be more cautious, knowing what to ask when eating out at restaurants or shopping for gluten free products.

    Caralee

    I’ve tried to find the link to listen to the RD several times and can’t find it, only the picture and loads of good comments, how do I listen to Cynthia Kupper?????

    Pat in TX

    A lot of the commentors seem so stressed about labels. Cooking and eating real food is the answer! Broth is so simple to make, and although it cooks low and slow it requires very little hands-on time, so why buy that nasty stuff at the store? Snacks should be real food, because processed food is junk – gluten free or not! Buy locally grown fruits and vegetables, and get to know your farmers. Same with pastured meats and raw dairy (unless you have cross-reactivity) – get to know the people raising your food and you will thrive, and so will they:-) If then gluten reactions in your family members are that important to you, isn’t it worth a little time and effort to make sure they have the very best?!!

    Carol Mielke

    Thank you Cynthia, this is great information and nice to have your website and comments. My Grandkids have some health problems which are being looked into, so thank you again for your discoveries. Sincerely, Carol.

    Kathy

    Thank you so very much for all you shared to help us all. Thank you.

    Carol Mielke

    Hi again Cynthia: I finally finished your talk since it was held over and thank you Tom for that. I learned so much more from you today, especially since we’re going to Florida after Christmas this is wonderful knowledge. I will find out if California Pizza Kitchen is in Daytona. I have found that Chick Fil-A is good. Thank you so much for sharing your knowledge with us, I think I’ll do a presentation on this to my Sorority Sisters where some think it is a fad! Nice to know about different levels of testing and questions to ask. Is it normal for families to take offense when you quiz the waitress? Let me know pls.My Grandson thought I was mad at the waitress when she brought my gluten free meal with a bun on it and I said I can’t eat that .Like you said , people pay more attention if they have a problem or someone near and dear has, so I thought I would have had a more understanding family, hope they don’t get this?? Thx, Sincerely, Carol P.S. I found out today after taking notes for a week that my husband has bought me the whole set of lectures, WOW!!!

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